Your Support is Making a Difference for Sjögren’s!
SSF Fall Update & Ways to Help
It's been a busy and exciting fall here at the Sjögren's Syndrome Foundation! In addition to the SSF's fall community awareness events, the Foundation staff is now getting ready to attend another scientific meeting, the American College of Rheumatology's (ACR) Annual Meeting, to focus on professional education of Sjögren's.
At the ACR Annual Meeting, the SSF will be both an exhibitor and presenter, in addition to holding working groups for those who treat Sjögren's. This meeting is the SSF's biggest venue for reaching rheumatologists and providing them the educational materials needed to better identify and treat their Sjögren's patients.
These SSF initiatives and programs that further our mission are only possible because of your support. As you can see below, there are many different ways that you can help this fall. I encourage you to learn about these opportunities and join our fight to conquer Sjögren's!
On behalf of the SSF, thank you for sharing your story, telling others about the SSF, attending our events, volunteering your time, donating and helping create a future of hope for all Sjögren's patients.
Chief Executive Office
New T-Shirt Design for Team Sjögren’s Turkey Trot Kits!
Learn what was Turkey Trot Alumni Erin's favorite part of joining Team Sjögren's!
My family and I wore our Team Sjögren’s T-Shirts and as we were racing, multiple people would comment about their friends, family or themselves being affected by this disease. Knowing that the Turkey Trot was bringing people together for a cause I believed in was a wonderful feeling.
Click Here to read the rest of Erin's Story
Whether you run or not, if you are a patient or know someone with this disease, we are all part of Team Sjögren's.
It's CFC Time!
We hope you will consider the Sjögren's Syndrome Foundation when choosing where to allocate your Combined Federal Campaign donation this year!
The SSF's CFC Code is: 10603
Tell your co-workers, friends and family how important it is to choose and write in the SSF on their campaign forms too! Every dollar impacts Sjögren's! For more information, please contact the SSF at 1-800-475-6473.
Save the Date:
SSF National Patient Conference, April 17-18, 2015
The Grand Hyatt Tampa Bay, Florida
2900 Bayport Dr,
Tampa, FL 336078
The SSF's annual National Patient Conferences are the best way to learn more about Sjögren's. Over the years, these Conferences have helped thousands of patients and their family members gain a better understanding of Sjögren's while giving them an opportunity to meet fellow Sjögren's patients.
If you want to be your own best patient advocate by gaining a thorough understanding of all the key aspects of Sjögren's, then our National Patient Conferences are for you!
More Details Coming Soon
Upcoming SSF Events
November 8, 2014- Nashville Area Sjögren's Awareness Walkabout
November 15, 2014- Streams in the Desert Trivia in Glen Ellyn, IL
November 15, 2014- Capital Region Sjögren's Awareness Walkabout
November 16, 2014- Boston Sip for Sjogren's
January 9-11, 2015- Team Sjogren's Disney
February 20, 2015- Phoenix Sjogren's Walkabout & Health Fair
April 17-18, 2015- SSF National Patient Conference
Erin, diagnosed with Sjögren’s in February of 2008, challenged herself to run as a part of Team Sjögren’s Turkey Trots in 2011 and shares her experience below of running while managing her health. Here’s Erin’s story:
I ran track in high school and college and have always enjoyed running, so I got very excited when I heard there was a Team Sjögren’s Turkey Trot fundraising event. I had always wanted to participate in these events and once I knew I could bring awareness and raise money for Sjögren’s, I wanted to do it right away.
My doctor continuously talks to me about keeping up with my physical fitness, not only for my personal wellbeing but to help fight off sickness that Sjögren’s patients are prone to and I thought joining Team Sjögren’s was a way to accomplish that. Once I decided to run, my husband, Mom, older sister, and her husband, chose to run with me.
Running for long periods of time was definitely difficult and I’m finding my recovery time to be much longer as I get older. I don’t bounce back the way I used to. However, when I was running the race, knowing that I was running for a cause I’m directly affected by kept me motivated and pushing for the finish line.
I would train with my husband and made sure I was eating healthy options and sleeping a sufficient amount. I started noticing the negative effect it would have on my body if I didn’t get enough sleep or ate the wrong food. Running is hard enough, but when you have a weakened immune system it can take so much more out of you. You need to have a certain level of mental toughness along with support to get through those hard times.
Even though the training was hard for me, I absolutely loved being able to participate in a race that could not only bring awareness to this disease but also raise funds for a possible cure. I also liked being able to connect with others who have Sjögren’s. My family and I wore our Team Sjögren’s T-Shirts and as we were racing multiple people would comment about their friends, family or themselves being affected by this disease. Knowing that the Turkey Trot was bringing people together for a cause I believed in was a wonderful feeling.
The initial thought of getting out there to run or walk in a 5K seemed like a lofty goal, but one of my biggest motivations was knowing that my family and friends were by my side. It was an incredibly uplifting experience to realize so many people believed in me and donated to my team’s fundraising efforts. I felt so proud of myself when I finished the race. I’m sure I could have run faster, but knowing I completed the race and made my family and friends proud was validation enough for me.
Thank you Erin for sharing your story and stepping up for Sjögren’s by running again this year as a part of Team Sjögren’s Turkey Trots!
This year, we hope you will also start your day of giving thanks by stepping up for Sjögren’s as a part of Team Sjögren’s Turkey Trots!