Subscribe via E-mail

Your email:

Latest Posts

Posts by category

Follow Me

Donate

Help support the SSF's 5-Year Breakthrough Goal initiatives by donating.

donate-now

Conquering Sjogren’s: Follow us on our journey to change the face of Sjogren’s

Current Articles | RSS Feed RSS Feed

World Sjogren's Day - July 23

Posted on Tue, Jul 17, 2012
 

describe the image

On July 23rd, the Sjogren's Syndrome Foundation will join with other Sjogren's groups around the world to celebrate World Sjogren's Day.

World Sjogren's Day commemorates the birthday of Henrik Sjogren, who first identified this disease in 1933, while bringing organizations across the world together to raise awareness about Sjogren’s.

This year, the Foundation is hoping to raise $10,000 for research in honor of Dr. Sjogren's 113th birthday. Click Here to make a donation towards research to celebrate World Sjogren's Day. You can also set up your own FirstGiving page and ask friends and family to donate to the SSF in honor of Henrik Sjogren and World Sjogren's Day!

World Sjogren's Day creates a wonderful opportunity for you to talk about Sjogren's with the people in your life. While sharing can be a scary thought initially, you'll never know what support is out there or who may also be dealing with the same issues you were before your diagnosis. By sharing, you may help someone get diagnosed quicker but most importantly, you will be helping to make Sjogren’s a household name. 

Write a comment below and let us know what you did for World Sjogren’s Day or what it was like to talk to someone in your life about Sjogren’s. Together we can conquer Sjogren's! 


Tags: 

Comments

We are one week away from World Sjogren's Day and it is so important to make everyone aware. Start with your own doctors, eye care professionals and dentists and expand to your circle of friends and neighbors. Every little seed planted holds potential.
Posted @ Tuesday, July 17, 2012 2:44 PM by Jana Pendragon Bowdish
I was diagnosed with Sjogren's Syndrome over 15 years ago. More research on medicines to help with extreme fatigue,muscle aches,and cognitive thinking is definitely needed. Any donations to the Sjogren's Syndrome Foundation would be greatly appreciated.
Posted @ Tuesday, July 17, 2012 9:35 PM by Jeanette Cummings
I was diagnosed with Sjogren's Syndrome in late 2007 but my specialist thinks I had it for about 6 years before that, but the symptoms were treated individually. More research needs to be done and more education as there is limited info out there. Most people have never head of it until they are diagnosed with it. Me included.
Posted @ Wednesday, July 18, 2012 9:43 AM by Joan Bloch
Diagnosed about two years ago, learning more about the syndrome from the internet than my doctor.dealing with fatique and joint pain, still working full time.
Posted @ Wednesday, July 18, 2012 10:02 AM by Pam Thompson
I was diagnosed about 7 years ago, but I had been struggling with it for a few years before that. I was initially just told it was 'my age', but I knew my peers weren't suffering as much as me. The hardest part for me is the fatigue and 'brain fog'. Much more research and education on Sjogren's needed, I've had Doctors 'Google' it right in front of me! Keep up the good work. x
Posted @ Thursday, July 19, 2012 7:59 AM by Rose Chappell
I was diagnosed 2 years ago, but in hindsight, have had Sjogren's for over 20 years, 10 of those with pronounced, classic symptoms that my doctor, dentist & eye specialist all should have picked up on, but didn't.  
 
More education is needed, and less enthusiasm by the medical profession to diagnose "depression" "chronic fatigue" and worse still, "hypochondria". 
 
The worst part for me is the brain fog, constant fatigue/exhaustion and joint pain, and the fact that I don't look like I'm having trouble thinking, am completely exhausted, and am in continual pain. I look fine most days, even those days when I'm hanging on by a thread.  
 
To the family & friends of people with Sjogren's, be ever-mindful that the person standing in front of you looking OK is actually not OK. We learn to "soldier on", but it's a constant battle for us, and we need LOTS of downtime.
Posted @ Friday, July 20, 2012 9:10 AM by Cheryl Gunner
Taken 6-19-12 
This is me Julie Holding 
A Picture Of What 
I Looked Like A Year Ago. 
This Is Either A Cutaneous 
Lupus Or Sjogrens Rash. 
Or It Could Be Sarcoidosis 
For All I Know I Have Been 
Diagnosed With All These 
Plus Connective Tissue Disorder 
& Fibromyalgia. 
So If Anyone Else Has Had A Rash 
Like This One I Am Showing 
Here Let Me Know. 
I Remember Last Year Searching 
The Internet to see anyone that looked like me. 
I Am Wearing A Cold War Patriot Shirt. 
I Am A Cold War Patriot Because I Worked At A Nuclear Power Plant For 5 Years Back In The 70’s. 
Posted @ Friday, July 20, 2012 11:04 PM by Julie
Julie, please don't use this forum to sell products. It's not what this page is about.
Posted @ Monday, July 23, 2012 8:46 AM by Cheryl
There are many aspects of Sjogrens Syndrome I may not be aware of. I was officially diagnosed 3 years ago but have had it longer. What is this "brain fog" all about? I have trouble but thought it was something else.
Posted @ Monday, July 23, 2012 4:49 PM by Carol Weber
I have had this nasty stuff since the late 80's and there have been times when I think life has no quality and have thought about taking my own life...but think of my family... Life is very hard and I get so mad at myself that I can not do what I used to be able to do.. I will keep on going and keeking the faith that a cure can be found for all illness. God Bless...
Posted @ Wednesday, August 01, 2012 6:36 AM by Donna Gast
I am newly diagnosed with Sjrogrens. I joined the Sjrogrens Foundation three weeks ago but haven't heard from them. What to do?
Posted @ Monday, August 27, 2012 5:47 PM by Colleen Rogal
Dear Collen, 
 
I've never joined the SF, so I don't know how long they take to reply to you. But in the meanwhile,there are several Sjogren's support groups on Facebook, these can be a big help if you have any questions/quiries as its all fellow sufferers. Just put Sjogren's in the search at the top of the page. Good luck with your journey. 
 
Rose x
Posted @ Tuesday, August 28, 2012 2:52 AM by Rose Chappell
Hi Colleen :) Rose is right there are some Sjogren's groups on Facebook. I own one of them and you are more than welcome to join hun. If This link doesn't work the group is called Sjogren's Syndrome Support for people living in Canada & America https://www.facebook.com/groups/17468763766/ I'm Joan so please let me know on the group if you join. Hugs. xox
Posted @ Tuesday, August 28, 2012 10:19 AM by Joan
I am newly diagnoes Sjrogrens
Posted @ Friday, October 26, 2012 3:11 PM by Angela Ramirez
I, Linda, am 63 yrs. old. I have had inflammatory symptoms since I was 24. Also, I had dry mouth & very light sensitive (blue) eyes for most of that time. I was only diagnosed with this illness couple of years ago by rheumatologist when, not healing from a hard fall showed very high rheumatoid factor. I live with enormous amount of pain in left hip, lower back and hands. I have frequent red flushes with hot in hands and upper face and torso. I am losing mobility. It is depressing to stay at home so much. It seems very misunderstood and misdiagnosed by the family med. practitioners! I also have head fogging and extreme fatigue.
Posted @ Saturday, October 27, 2012 5:47 PM by Linda Paul
Post Comment
Name
 *
Email
 *
Website (optional)
Comment
 *

Allowed tags: <a> link, <b> bold, <i> italics