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Our Top 5 Tips for Raynaud's Syndrome


Raynaud’s Syndrome occurs in approximately 15-30% of patients with Sjögren’s.

Raynaud’s Syndrome (sometimes called Raynaud’s phenomenon) is defined as repeated episodes of color changes in the fingers and/or toes with exposure to cold temperatures or during episodes of emotional stress. The color changes are due to a spasm of the blood vessels that feed the fingers and toes. The digits typically turn very white, then can take on a bluish color with prolonged exposure to the cold, and finally can turn very red as blood flow resumes.

Sjogren's Syndrome Foundation's Top 5 Tips to control your Raynaud's Syndrome:raynauds phenom

  1. If you have access to water when a flare starts, run warm water over your fingers and toes until skin color returns to normal.

  2. Do not smoke — this constricts the blood vessels that feed the hands and feet.

  3. Moisturize your hands and feet every day to prevent your skin from cracking.

  4. When your hands or feet start to feel cold, wiggle your fingers and toes, move your arms and legs around to get blood flowing, or put your hands under your armpits to warm them up.

  5. Talk to your doctor about your symptoms. Several medications can be used to help the vessels stay dilated, including a class of blood pressure medications called calcium channel blockers. Some medicines, such as beta blockers used for high blood pressure, may make Raynaud’s worse.

These Tips are from the SSF Patient Education Sheet: Raynaud's Syndrome- Click here to view the full sheet

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I started having symptoms of Raynaud's Syndrome when I was very young. I was diagnosed with Sjogrens 2 and 1/2 years ago. I am taking Plaquenil and the Raynaud's symptoms seem to be less often and when I do have symptoms they are less severe.  
ML in Vermont
Posted @ Tuesday, March 05, 2013 12:01 PM by ML in Vermont
i found out five years ago i had sjogren"s sydrome from ohio
Posted @ Tuesday, March 05, 2013 6:03 PM by linda
I developed Sjogrens Sydrome right after menopause and raynauds shortly thereafter. I was put on Procardia for 3 years and developed Vertigo to a point I had to stop the medication. Since I have not taken anything for the Raynauds, it has gotten worse to the point of severe cracked fingers and blueblack color. I use lots of moisturizing creams and gloves to ease the pain.
Posted @ Wednesday, March 06, 2013 11:17 AM by LYDIA M. PEREZ
I have had Raynaud's as long as I can remember and the episodes are becoming more frequent. About two months ago my right big toe must have been involved for a long period of time. I was not aware that it was happening. I thought I might have injured my toe as it became very inflamed and the started to turn black and ached something awful. It scared me to death. It has gotten better and most of the area that had been black has peeled off. Raynaud's can do severe damage if the episode goes on for very long time.  
I have a cloth bag with rice in it that I heat in the microwave. This has been a life saver for me.I
Posted @ Wednesday, March 06, 2013 12:13 PM by Greer Conrad
I'd been diagnosed with SS for 5 yrs before I started showing signs of Raynaud's. when I'd run, my hands would hurt and turn white. I think physical stress should be added, not just emotional. I'm 38.
Posted @ Wednesday, March 06, 2013 7:25 PM by Kim
I have Buerger's Disease, which is in the family of vascular diseases like Raynauds. I was diagnosed 28 years ago. I also have Sjogren's diagnosed last year. Does anyone else have Buergers and does anyone believe it is associated with Sjogren's? 
Posted @ Thursday, March 07, 2013 7:18 AM by Nancy K
I have Raynaud's & Sjogren's. The Raynaud's is worse on 40-50 degree damp days although it could strike by going into the freezer or shopping in the frozen food section. I keep gloves in all my pockets and in the car. I also keep a pair of cotton ones next to the bed. My friends and family used to laugh but now everyone is used to me with gloves on.
Posted @ Sunday, March 10, 2013 5:58 PM by Donna
Biofeedback temperature training really works well to help hand/foot warming, I don't know why it isn't mentioned here or used more in the medical field. If it's combined with relaxation training/hypnosis, it works even faster.
Posted @ Saturday, March 16, 2013 10:37 PM by Xavia
I have sjogrens,fibro,neurophy, 
raynauds, plus other things. 
my doctor told me to use mittens 
instead of gloves, they keep your 
fingers touching for the warmth.
Posted @ Monday, April 15, 2013 3:29 PM by Margie Ludwig
Thanks for the websight about Sjogren's Sydrome. It is very hard to find articles concerning this disease. It is great that it is being recognized more as SS. I have a wonderful husband that understands my bad days. What a blessing. I pray more research will be done to help those affected. 
Posted @ Thursday, April 25, 2013 10:23 AM by Faye O.
I have to disagree with the first tip. Although running warm water over your hands may help them feel better intially, after that affect has worn off the Raynaud's flare can actually get worse. Always warm you hands slowly, similar to the treatment of frostbite, with body heat is best.
Posted @ Monday, May 27, 2013 3:38 AM by tracey
I have reynauds in my knees- not much information about this area is to be found. It can be quite painful I use heat wraps for relief. Looking for knee warmers.
Posted @ Saturday, September 07, 2013 2:02 PM by Mary Beck
The digits typically turn very white, then can take on a bluish color with prolonged exposure to the cold, and finally can turn very red as blood flow resumes=)))))))
Posted @ Friday, November 29, 2013 10:14 AM by david
The digits typically turn very white, then can take on a bluish color with prolonged exposure to the cold, and finally can turn very red as blood flow resumes.=)))
Posted @ Tuesday, December 10, 2013 3:49 PM by swen
My Sjogrens has gotten worse through the years, I find it difficult to go anywhere because suddenly a get a flare up without warning, it has also affected my swallowing I have excessive dryness in my esophagus which makes it very difficult to swallow food. Sadly my doctor has informed me there is nothing they can do for these problems, it's just part of the disease.
Posted @ Tuesday, December 10, 2013 4:36 PM by Martha Martinez
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