Conquering Sjogren’s: Follow us on our journey to change the face of Sjogren’s

Celebrating our Future!

Posted on Wed, Aug 01, 2018

Find me on:

Celebrating the future of the SSF!

SSF This Is Sjogren'sThis past July 23rd, the Sjögren's Syndrome Foundation (SSF) joined with organizations around the world to celebrate the 8th annual World Sjögren's Day and what would have been Dr. Sjögren's 119th birthday. World Sjögren's Day commemorates the birthday of Henrik Sjögren, the ophthalmologist who first discovered the disease in 1933, which has helped all patients find answers to their health questions.

More importantly, celebrating this day allows us to reflect back on the incredible advancements recently made in Sjögren's and look to the future at all the work that still lies ahead.

With millions of patients suffering around the world, Sjögren's is one of the most prevalent autoimmune diseases but it is not a “cookie cutter” disease and affects patients differently. The complexity of Sjögren’s can be seen in the various types of treatments and care needed for patients.  Its complexity is also seen in the progress the SSF still needs to make.

Every day the SSF strives to represent your voice and provide hope to patients and their families through our many initiatives.  Every program and project is evaluated with the patient in mind, which is why we want to hear from you!

Let your voice be heard!

In honor of this past World Sjögren’s Day, we encourage you to share with us your views of the SSF and how you envision the future. Let your voice be heard and comment below with your thoughts on the following SSF questionnaire.


Questionnaire:

Celebrating the future of the SSF and hope for Sjögren’s

(Please share your answers below or email them to tms@sjogrens.org)  

  • What SSF resource(s) are you the most thankful for:
  • What are the three most important focuses of the SSF:
  • In the next five years, how do you envision your future (or that of a loved one) living with the disease:
  • What are your hopes for the future of Sjögren’s for the next generation:

faces all

Take Control of Your Health!  Receive our Newsletter by Becoming an SSF Member

Topics: World Sjogren's Day, Advocacy, #ThisIsSjögrens, Sjögren’s

Subscribe via E-mail

For reprint permission requests, please contact us at info@sjogrens.org.

Donate

Help support the SSF's 5-Year Breakthrough Goal initiatives by donating.

Donate to Research

Follow Me

Latest Posts

Posts by category

Some additional information in one line