Conquering Sjogren’s: Follow us on our journey to change the face of Sjogren’s

Your Support is Making a Difference for Sjogren's!

Posted on Fri, Nov 07, 2014

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Your Support is Making a Difference for Sjögren’s!
SSF Fall Update & Ways to Help 

Dear Friends,

It's been a busy and exciting fall here at the Sjögren's Syndrome Foundation! In addition to the SSF's fall community awareness events, the Foundation staff is now getting ready to attend another scientific meeting, the American College of Rheumatology's (ACR) Annual Meeting, to focus on professional education of Sjögren's. 

At the ACR Annual Meeting, the SSF will be both an exhibitor and presenter, in addition to holding working groups for those who treat Sjögren's. This meeting is the SSF's biggest venue for reaching rheumatologists and providing them the educational materials needed to better identify and treat their Sjögren's patients.

These SSF initiatives and programs that further our mission are only possible because of your support. As you can see below, there are many different ways that you can help this fall. I encourage you to learn about these opportunities and join our fight to conquer Sjögren's!

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On behalf of the SSF, thank you for sharing your story, telling others about the SSF, attending our events, volunteering your time, donating and helping create a future of hope for all Sjögren's patients. 

Sincerely,

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Steven Taylor
Chief Executive Office

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New T-Shirt Design for Team Sjögren’s Turkey Trot Kits! 

Erin faces

Learn what was Turkey Trot Alumni Erin's favorite part of joining Team Sjögren's!

My family and I wore our Team Sjögren’s T-Shirts and as we were racing, multiple people would comment about their friends, family or themselves being affected by this disease. Knowing that the Turkey Trot was bringing people together for a cause I believed in was a wonderful feeling.

 Click Here to read the rest of Erin's Story

 

describe the image Whether you run or not, if you are a patient or know someone with this disease, we are all part of Team Sjögren's. 

Click here to order your Team Sjögren's Goes TURKEY Kit!


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It's CFC Time!

We hope you will consider the Sjögren's Syndrome Foundation when choosing where to allocate your Combined Federal Campaign donation this year!

The SSF's CFC Code is: 10603

Tell your co-workers, friends and family how important it is to choose and write in the SSF on their campaign forms too! Every dollar impacts Sjögren's! For more information, please contact the SSF at 1-800-475-6473.

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NPC

Save the Date: 
SSF National Patient Conference, April 17-18, 2015

 The Grand Hyatt Tampa Bay, Florida 
2900 Bayport Dr,
Tampa, FL 336078

The SSF's annual National Patient Conferences are the best way to learn more about Sjögren's. Over the years, these Conferences have helped thousands of patients and their family members gain a better understanding of Sjögren's while giving them an opportunity to meet fellow Sjögren's patients.

If you want to be your own best patient advocate by gaining a thorough understanding of all the key aspects of Sjögren's, then our National Patient Conferences are for you!
More Details Coming Soon

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Upcoming SSF Events 

November 8, 2014- Nashville Area Sjögren's Awareness Walkabout

November 15, 2014-  Streams in the Desert Trivia in Glen Ellyn, IL

November 15, 2014- Capital Region Sjögren's Awareness Walkabout

November 16, 2014- Boston Sip for Sjogren's

January 9-11, 2015-  Team Sjogren's Disney

February 20, 2015-  Phoenix Sjogren's Walkabout & Health Fair

April 17-18, 2015- SSF National Patient Conference

Take Control of Your Health!  Receive our Newsletter by Becoming an SSF Member

Topics: Walkabouts, Sjogren's, Advocacy, 50in5: Breakthrough Goal, Turkey Trots

Shannon Boxx Steps Up for Sjogren's Awareness

Posted on Fri, Feb 15, 2013

The Sjögren's Syndrome Foundation is thrilled to welcome Shannon Boxx as the 2013 Honorary Walkabout Chairperson!

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Shannon Boxx, member of the U.S. National Women’s Soccer Team and Olympic gold medalist, has been an inspiring Sjögren’s advocate since she announced she has Sjögren’s this past year and was connected to the Foundation by Athletes for Hope.  Shannon is now taking Sjögren’s awareness to communities around the United States by stepping up as the SSF Honorary Walkabout Chairperson!

Click here to learn more about SSF Walkabouts and an event calendar

If there is already a Walkabout in your area and you would like to learn more about it or if you are motivated and want to start an event in your area- please contact Ben Basloe at 301-530-4420 x207 or by email at [email protected] to learn how you can get involved!

Want to learn more about Shannon's journey with Sjögren's? Listen to her interview with American Airlines and US Airways about being diagnosed with Sjögren's and why raising awareness is so important to her by clicking here.

We hope you will join Shannon and step up for Sjögren's in your community by participating in a SSF Walkabout!

 

Learn About Hosting a Sjögren’s Awareness Event

Topics: Shannon Boxx, Walkabouts, Sjogren's

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