Sjögren’s Snapshot

Welcome to our first installment of the Sjögren’s Snapshot!

The Sjögren’s Snapshot was created by the Sjögren’s Syndrome Foundation to keep our donors, our supporters and the Sjögren’s community updated quarterly on the latest in Sjögren’s research, education and awarenesss. Each installment of the Sjögren’s Snapshot will feature highlights on what is happening in Sjögren’s as the SSF continues our goal of making Sjögren's a household name, increasing treatment options for Sjögren's patients while also helping to educate healthcare professionals on how to treat and manage Sjögren's.

In the coming year, the SSF will further embark on a robust program that includes partnering with pharmaceutical companies and key opinion leaders in the field to develop new therapeutics to treat Sjögren's. Patients deserve a drug to treat Sjögren's and the time is now to make that happen!

The progress the SSF continues to make and the recent advancements in Sjögren's research and awareness speaks to the combined efforts of hundreds of volunteers. It is because of you and your willingness to share your story, attend our events, volunteer your time, and donate to the SSF that we are seeing great strides in many areas of Sjögren's.

It will take hard work, dedication and an army to achieve our plans for 2016. I am excited to keep you updated on our journey to transform the future of Sjögren's. I hope you will consider stepping up and getting involved. The Time Is Now!

Sincerely,

Steven Taylor
Chief Executive Officer

It is because of your generous support that the SSF is able fund talented researchers and expand the Foundation's research program. We strive to foster research that will have the greatest potential impact on Sjögren's patients, ensuring new therapeutics are developed and a cure is found.

The SSF research program is designed to reward exceptional research efforts and encourage investigators to continue their focus on Sjögren's throughout their careers. Many of our researchers' work has led to larger grants by other institutes to continue their work and new Sjögren's breakthroughs!

The SSF is proud of the work it funds and would like to share with you our five new 2015-2016 Research Grant Recipients.

Click Here to View All 2015/2016 SSF Research Grantees

The Sjögren's Syndrome Foundation is dedicated to providing the most up-to-date information to patients and healthcare providers.

Patient education sheets are one-page sheets written by healthcare providers on various symptoms of Sjögren's to help provide a better understanding and coping techniques.

A few of our most popular SSF patient education sheets include:

Click here to view all of the SSF Patient Education Sheets

2016 National Patient Conference
"The Sjögren's Journey"

April 8-9, 2016

Hilton Seattle Airport & Conference Center
17620 International Boulevard,

Seattle, Washington

Presentation topics will include:

Sjögren's Overview
Dry Skin & Dermatological Issues
Oral & Ocular Manifestations of Sjögren's
Examining Sjögren's - Case by Case
Tips for Your Sjögren's Journey
Gynecological Issues with Sjögren's
An Inside Look at Sjögren's and Gluten-Free Diets
Sjögren's - Where are we in Drug Development?

Click here to view the 2016 NPC brochure

Sjögren's diagnosis time shortens to 3.5 years

Four years ago the SSF announced the launch of our 5-Year Breakthrough Goal:

"To shorten the time to diagnose Sjögren's by 50% in five years!"

After another great year of increasing awareness, the SSF once again worked with a marketing research company to conduct our annual survey of newly diagnosed patients. We are proud to announce that through this survey, it has been determined that it currently takes an average 3.5 years to receive an accurate diagnosis!

When the Goal was first launched, research showed that Sjögren's patients searched for over five years to receive an accurate diagnosis - an amount of time that was way too long. This prompted our Goal to decrease that time to under 2.5 years by the end of 2017 and with your help, we are starting to see it become a reality. Thank you for helping us create a future filled with hope for all Sjögren's patients and their families!

Follow the SSF on our journey of transforming the future of Sjögren's:

In December, the SSF announced a goal to raise 2,015 donations by December 31st. Thanks to the amazing support from our donors throughout the month, and most impressively, the last 48 hours before midnight on the 31st, we received 2,363 donations in the month of December!

These donations represent the trust you have in the SSF, the recognition of the valuable work we are doing and the difference being made in the world of Sjögren's. We are truly grateful for the all of the donations and support we received throughout 2015.

Sjögren’s Snapshot

Announcing SSF's 2015/2016 Research Grantees

Patient Resources

Learning Together

Igniting A Change