Conquering Sjogren’s: Follow us on our journey to change the face of Sjogren’s

Why I Run for Team Sjögren's: Dr. Scott Lieberman

Posted on Mon, Oct 14, 2019

SSF Turkey Trot 2019“How did you first become involved with the Sjögren’s Syndrome Foundation?”

I am a pediatric rheumatologist with an interest in better understanding Sjögren’s in children. This naturally led to me to connect with the Sjögren’s Syndrome Foundation (SSF). My first formal interaction with the Foundation was in 2015, when the SSF invited me to contribute to their publications to help raise awareness that children get Sjögren’s too. Along with a colleague and friend, Dr. Jay Mehta at the Children's Hospital of Philadelphia, we wrote articles for The Moisture Seekers, Sjogren’s Quarterly and put together an SSF Patient Education Sheet on pediatric Sjögren’s. This was a start to many additional interactions with the Foundation, which have been great experiences for me on many levels. I am constantly amazed by how much the SSF does to promote awareness and to help better understand Sjögren’s in all people, in order to develop better treatments to help improve the quality of lives of those with this potentially devastating, yet for some reason often overlooked, disease.

20171123_083926“What made you and your son decided to run a Turkey Trot race for Team Sjögren's?”

A few years ago, my son Tyler developed an interest in running, and we started running 5K races together. I knew about the Team Sjögren’s running events where participates from around the country would run together as a team, but we have not been able to make those. Then when I saw an email about running as a part of Team Sjögren’s but in one’s own local Turkey Trot, I mentioned it to Tyler. He was excited, so we signed up for our local Turkey Trot in Cedar Rapids, Iowa, and also signed up with the SSF to run this race for Team Sjögren’s.

“Before running in the race, was your son familiar with Team Sjögren's and how did you explain it to him?”

Besides participating in efforts to better understand Sjögren’s in children, I run a basic immunology laboratory focused on understanding what goes wrong with the immune system leading to the autoimmune attack on tear and saliva-producing glands in Sjögren’s. Tyler has heard me talk about Sjögren’s around the house on many occasions and has watched me practice various talks on the different aspects of Sjögren’s. (I actually included Tyler in the acknowledgments during my presentation on Pediatric Sjögren’s at the 2017 SSF National Patient Conference because he had made some suggestions when I was practicing that talk!)

Representing Team Sjögren’s at our local Turkey Trot meant something to both Tyler and myself. He wanted to make sure he understood what exactly it meant to run as a part of Team Sjögren’s. I explained to him that by wearing the Team Sjögren’s shirts and hats and pins to the race we were helping to raise awareness about this disease. I explained to him that this was especially important because many people do not even know that this disease exists, even though it is actually very common. He wanted to know what he should say to people if they asked what Team Sjögren’s was. Then he wanted to practice his response after I explained to him that autoimmune diseases occur when one's immune system gets confused and begins to attack one's own body, and that with Sjögren’s, the immune system attacks the tear and saliva-producing glands but can also attack almost any other part of the body too. That led to many additional questions about the disease and made him much more confident in fully representing Team Sjögren’s on race day.

“Did anyone at the race ask you or Tyler about Sjögren’s?”

Tyler and I wore our Team Sjögren’s shirts, hats, and pins for the race. Undoubtedly, people saw that we represented Team Sjögren’s, but unfortunately, Tyler did not get the opportunity that day to explain to anyone what Team Sjögren’s was. Maybe we ran so fast that no one could stop us to ask!

Click here to purchase your Team Sjögren's Turkey Trot T-shirt/kit with our new 2019 design! 

Click here to order your Team Sjögren's Goes TURKEY Kit!

       Team Sjögrens T Shirt Front   Turkey Trot Kit 

Topics: Team Sjogren's, Turkey Trots

Ask the Doctor: Skin Rashes and Sjögren's

Posted on Mon, Sep 23, 2019

Skin Rashes and Sjögrens

Skin rashes most certainly occur in the setting of Sjögren’s. As opposed to many of the other autoimmune skin rashes that I see in my autoimmune dermatology clinic, there are no rashes that are specific for Sjögren’s. In other words, I cannot look at a rash in a Sjögren’s patient and immediately tell them that they have Sjögren’s. In comparison, I can often look at a lupus rash and tell the patient they have underlying lupus. That being said, Sjögren’s patients exhibit a variety of skin rashes that are important to recognize and know when to see a board-certified dermatologist.

By and far the most common skin conditions associated with Sjögren’s are xerosis, or clinically dry skin, and eczematous dermatitis. These are caused primarily by barrier dysfunction of the skin. Gentle skin care practices and liberal moisturizers are the best way to prevent these common skin eruptions. When caring for your skin you should take no more than one short, lukewarm shower per day. You should remain in the shower for less than 10 minutes. Soaps like Dove sensitive and VanicreamTM, can be utilized as they will not strip your skin. If a wash cloth is used while bathing, it should be limited to areas that give off body odor like the armpits, genital, and buttock areas, in order to not disrupt the skin barrier. Immediately after getting out of the shower, you should pat dry and then apply a moisturizer. Ointments are the best moisturizers followed by creams. Lotions are not typically moisturizing enough for patients with Sjögren’s. The best ointments are Vaseline® or Aquaphor®. If an ointment is too greasy for your taste, cream moisturizers like CeraVe®, VanicreamTM, Eucerin®, or Aveeno®can be used. For itchy skin, Sarna Original lotion can give immediate relief especially when stored in the refrigerator. If scaly, dry skin is present, utilizing moisturizers with lactic acid, urea, or salicylic acid can be used. Examples include: AmLactin®, CeraVe® SA, and Eucerin® Roughness Relief. If your rash is not responding to moisturizers and gentle skin care practices, a prescription corticosteroid cream or a steroid-sparing anti-inflammatory cream may need to be prescribed by your physician.

If you develop a purple-to-red rash that does not lighten, or blanch, with pressure, ulcerations of the skin, or a purple net pattern on your skin, this should prompt you to see a dermatologist for evaluation. Rashes that are associated with purpura (blood spots) can represent vasculitis, an inflammation of the blood vessels. Although these rashes are not as common as the ones discussed above, they are important to recognize in Sjögren’s patients and should be seen quickly by a dermatologist.

Natalie Wright, MD, FAAD

This information was first printed in The Moisture Seeker, SSF's member newsletter.

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Topics: Sjogren's, Treatment, Dry Skin, Flare,, Sun Sensitivity, Skin Rashes, Vitamin D, Lupus, Vasculitis

Yoga and Sjögren's: There's a pose for that!

Posted on Thu, Sep 12, 2019

As finding alternatives to overall wellness, mind and body, continue to evolve in present day, many holistic health techniques have stood the test of time, proving to offer benefits that heal the body from the inside out. Yoga is one of these holistic healers. Many centuries ago, when yoga was said to be created, ancient peoples made yoga their daily routine to treat and ward off disease and to become peaceful in the mind. The body would react to this practice over- time, ceasing illness and spiritual negativity from the body. As I continue on my journey into offering yoga for therapeutic purposes as a registered yoga teacher, I witness what these ancient yogis were onto. Yoga is a practice that benefits the body in many ways. Different yoga poses promote healing for different body parts. Here are some poses that have exponential benefits:

Energize & Open Your Heart with Camel Pose

Sanskrit Name: Ustrasana

Boost your energy and open your heart with camel pose. This pose is known for eliminating the
feeling of sluggishness or fatigue and promoting energy through the body while creating more oxygen
to the brain. Come to your knees on the floor with knees hip-distance apart. Allow your toes to untuck and stabilize through the legs. Bring your hands to your lower back with palms facing in and finger tips facing down. Push the pelvis forward to create space for the spine to keep alignment. Inhale and lift your heart higher by letting the shoulder blades relax down the back. Exhale and allow your back to release down, energy through the crown of the head as you lean back. Let your neck relax, tensing up here will be counteractive. Breathe deeply for 5 to 10 breaths or until you find comfort in the pose. Inhale to slowly rise back up to a straight spine. Release with a few trunk twists or any movement that will feel good to your body after this pose.

Take a Chill Pill & Relieve Anxiety with Bridge Pose

Sankrit Name: Setu Bandha Sarvangasana

Feeling anxious and nervous about something? Alleviate stress, worry, and anxiety with bridge pose, a beginner’s inversion.

Lie flat on your back with knees bent parallel, feet flat on the ground, arms down by your sides. On your inhale, rise your pelvis toward the sky and keep pushing down through the feet and hands to balance the weight. Take this a step further by placing a block or study pillow under the back to stay with your pelvis elevated. Stay here for about 5 breath cycles. On a slow exhale, lower back down slowly to your mat and repeat.

Ease S.I. Joint Discomfort with Triangle Pose

Sanskirt Name: Trikonosana 

Experiencing aches and pains in your lower back area? It could be something deeper caused by your sacroiliac joint, the pelvis joint formed by the sacrum and ilium. Its main function is to manage stability and weight transfer. While many experience this pain, so few actually know it
is connected with their sacroiliac joint. Visiting a chiropractor if you are unsure is highly recommended, however, spending some time on your yoga mat may be the best way to relieve the pain. Standing poses, like Triangle Pose (Trikonosana), can increase strength in the glutes and rotator muscles, which help support the S.I. joint.

Stand up against a wall and step feet apart with a wide stance, feet should be wider than shoulder-width and toes facing forward. Turn your left toes to face
the side, so that your left foot is now parallel against the wall. Press into both feet, pull up in the knees, and keep the legs straight. Push into the right hip and bring the arms into a T, with finger tips reaching away. Begin to reach your left hand down toward your toes, 
and continue to bring your right arm up and back. Continue to reach until the shoulders are stacked vertically and you reach your shin, toes, or the ground inside your left foot. Engage your core and try to keep your bottom from touching the wall without leaning forward. Breathe deeply 5 to 10 breath cycles. Inhale to rise back up to standing. Reverse the feet and re-peat on other side.

About the Author

Lee-Ann has a deep–rooted, therapeutic connection with yoga, and aspires to create opportunities for others that foster personal growth and well-being. She completed her RYT 200 at Bombay Yoga Company in 2016 and teaches at Mellow Yoga Studio in Philadelphia, PA. Lee-Ann recently created Two Hearts Dance & Yoga.

This information was first printed in The Moisture Seeker, SSF's member newsletter.

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Topics: Sjogren's, Joint Pain, Fatigue, coping with sjogren's, Chronic Pain, Flare,, Natural Treatments, Yoga

Get the Inside Scoop & Receive the SSF Newsletter!

Posted on Thu, Aug 29, 2019

Summer TMS CoverFor $3 a month, you can become a member of the Sjögren's Syndrome Foundation (SSF) and receive great resources, while also supporting the vital work being done to conquer this complex disease.

Join now with thousands of others who subscribe to our newsletter and receive discounts on Sjögren's resources. 

Member benefits include:

  • The Moisture Seekers newsletter: This 10 issues a year print newsletter contains the latest information on Sjögren's, practical tips for daily living, and answers to medical questions from the experts.

  • A New Member packet with helpful information about Sjögren's and the SSF. 
    *U.S. residents only. 


  • You will receive updates on new product launches and information/discounts available to SSF Members for over-the-counter and/ or prescription products.

  • Receive information about upcoming Sjögren's clinical trials and clinical research in your area.

  • Access to a network of knowledgeable volunteers and local support groups.

  • Exclusive access to the members-only section of sjogrens.org, featuring resources unavailable to other site visitors such as archives of the most popular newsletter articles, our online product guide and access to our online community.

  • Members-only discounts on a variety of products and services such as The Sjögren's Syndrome Handbook and registration for our educational conferences.

  • Providing the Foundation with one more voice to increase awareness, educate others, and encourage research – all of which help in the fight to conquer Sjögren's.

    Click here to become an SSF member today and email us at info@sjogrens.org with any questions. 

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Topics: Pulmonary manifestation, Dry Mouth, Dry Eyes, Sjogren's, Joint Pain, Fatigue, coping with sjogren's, Gastroesophageal Reflux, Advocacy, Sjögren’s, Heart disease

Pain and Sjögren's

Posted on Thu, Aug 15, 2019

Pain and Sjögrens Chronic pain is one of the most common symptoms associated with Sjögren’s. I have the interesting position of working as a healthcare provider in the field of comprehensive pain medicine as well as being a Sjögren’s sufferer. My role working as a Physician Assistant and Chiropractor is to help patients manage their pain. In our practice, we treat a variety of diverse conditions with a continuum ranging from carpal tunnel syndrome to abdominal pain and everything in between. While this can be a challenging area of medicine to practice, it is also quite rewarding to assist others in living a more enhanced quality of life.

Prior to being diagnosed with Sjögren’s, I rarely experienced pain. Recently, I was reminiscing back to a time not many years ago in which I only used ibuprofen once or twice over several years’ time. My own personal struggle with Sjögren’s causes me to endure discomfort in various areas of my body every day. I experience joint pain, especially in my knees and fingers. The nerve sensations in my muscles are also very discomforting. Additionally, only since the development of Sjögren’s, I suffer from debilitating pelvic pain. Non-steroidal anti-inflammatory medications ibuprofen and Celebrex seem to help the greatest for my pain. Heat is also quite effective. When I make more anti-inflammatory diet choices, my pain is absolutely better. This includes avoiding excessive sugars, flour, dairy, red meat as well as processed and fried substances. When I regularly take vitamin D and eat fresh cherries the pain also improves. If I have poor stress management and sleeping habits, my pain worsens. Finding motivation for regular exercise can be difficult as I also fight significant fatigue, but I know that movement is necessary to keep my joints and muscles mobile. I also use a TENS unit from time to time as well as over the counter lidocaine products.

It is fulfilling to assist in improving the quality of life of others that suffer from chronic pain. This is especially meaningful being that I endure pain daily. I encourage anyone experiencing chronic pain to seek out a comprehensive pain management specialist for evaluation.

by Rebecca Hosey, DC, MSPAS, PA-C

Dr. Rebecca Hosey is a Board Certified Physician Assistant and Chiropractor. She has practiced interventional pain medicine for many years and was diagnosed with Sjögren’s in 2015.

This information was first printed in The Moisture Seeker, SSF's member newsletter.

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Topics: Symptoms, Sjogren's, coping with sjogren's, Chronic Pain, Vitamin D, Natural Treatments

Acupuncture for Dry Eye

Posted on Mon, Jul 15, 2019

acupuncture July is Dry Eye Awareness Month!  We hope you enjoy this blog post aimed to promote dry eye awareness and education.

The “Living with Sjögren’s” patient survey, conducted by Harris Poll on behalf of the Sjögren’s Syndrome Foundation, SSF, showed that 92% of Sjögren’s patients suffer from dry eye. Chronic dry eye has two main causes: decreased secretion of tears by the lacrimal (tear-producing) glands and loss of tears due to excess evaporation. Both can lead to ocular surface discomfort, often described as feeling of dryness, burning, a sandy/gritting sensation, itchiness, visual fatigue, sensitivity to light and blurred vision. In Sjögren’s, a person’s white blood cells mistakenly invade moisture-producing glands and affects the entire body, including the lacrimal glands, causing inflammation and reducing secretion, which causes dry eye to be one primary symptoms of the disease.

Chronic dry eye does not typically get better on its own, and often times it will get worse. Acupuncture is a very safe treatment, and apart from occasional bruising, its side effects typically include improved sleep quality, relaxation of tense muscles, and a sense of wellbeing.

Question_and_AnswerCan acupuncture increase moisture with dry eyes?

The beauty of acupuncture is that it does not build a dependency and in fact builds independence by helping to rebuild and restore function to various body systems.

A study published in the Chinese Journal of Practical Ophthalmology “found that patients receiving acupuncture plus lubricant eye drops had a 76.92% improvement in rate of dry eye symptoms. Patients receiving only lubricant eye drops had a 53.85% improvement. Tear film stability improved significantly with acupuncture. Patients receiving acupuncture plus eye drops had a tear film break-up time of 4.03 seconds compared with 2.11 seconds for the eye drop only group.” This means that acupuncture resulted in increased tear production and slower tear evaporation, so tears last longer.

Another study, published in Ophthalmology Times, found that acupuncture “significantly improved patients’ subjective assessment of dry eye symptoms, was associated with significant reduction in use of artificial tears at six months, and its benefits lasted for 9-12 months.”

Having an autoimmune disease, like Sjögren’s, can be stressful and overwhelming at times, often leading to poor sleep quality. All of these work against creating and maintaining healthy levels of serotonin, which is fundamental to healthy tear production.

Receiving regular acupuncture helps maintain healthy serotonin levels, as well as to decrease inflammation, increase circulation, and stimulate the nervous system to focus on a specific region, such as the eyes.

What does this mean for Sjögren’s patients?

It means that although you have Sjögren’s and may always have to work to maintain a reasonable number of tears, a combination of diet, stress management, and acupuncture may be able to minimize and help keep your symptoms at bay.

Dr. Townsend, adjunct professor at the University of Houston College of Optometry, says that “the potential patient benefits of acupuncture suggests that, at the very least, we should consider contacting an acupuncturist and explore working together as a possibility.”

Acupuncture has become so popular in the past few years that everyone is adding it to their list of services. Look for a National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM®) board certified acupuncturist who has a minimum of four years of formal training and countless hours of clinical experience to ensure the best possible experience.

by Chris Leininger, DACM (c), Dipl. Ac. & ABT (NCCAOM), L.Ac., Founder and Director of Pure Health Acupuncture, LLC in Brazil, IN.

This information was first printed in The Moisture Seeker, SSF's member newsletter.

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Topics: Dry Eyes, Sjogren's, Treatment, coping with sjogren's, Natural Treatments, Acupuncture Treatment

World Sjögren's Day 2019

Posted on Wed, Jul 03, 2019

WorldSjogrensDay_logo

 On July 23rd, the Sjögren's Syndrome Foundation (SSF) invites you to participate in World Sjögren's Day - the perfect opportunity for people to come together to raise awareness about this devastating disease.

World Sjögren's Day was established by the SSF more than a decade ago and is the birthday of Dr. Henrik Sjögren (who first identified the disease in 1933). More importantly, it is meant to put a face on the millions of people who live with this disease and for everyone touched by the disease to come together to conquer the complexities of Sjögren's. 

World Sjögren's Day is also a valuable vehicle to educate others about the disease; it is a reason to donate or help raise funds to further Sjögren's research and education; and it draws attention to the impact Sjögren's has on people around the world!

2019 WSD collage - 1

During the month of July, YOU can help make a difference:

  • Share Your Story & Raise Funds: Create a personalized fundraising page and share why this cause is so important to you. Then ask your family and friends to support your efforts by making a donation to help conquer the complexities of Sjögren's.
  • Help Raise Awareness: Talk about Sjögren's with the people in your life. Share your personal story or that of a loved one with family, friends, neighbors or co-workers. Educate those around you about the disease. You can use this fact sheet to help.
On World Sjögren's Day, and all month long, join with others to have your voice heard and help conquer the complexities of Sjögren's. TOGETHER, we can make a difference!

Topics: World Sjogren's Day

Did You Miss the 2019 Sjögren's Conference?

Posted on Sat, Jun 29, 2019

2019 NPC CDIf you missed the SSF 2019 National Patient Conference, you can now get all the vital information you need in an audio format!

Seven of our most popular talks from the Sjögren's National Patient Conference held in Woburn, Massachusetts, are available for purchase. Each talk is 30-40 minutes long and comes with the handouts used by the presenter so you can follow along.

 

Available Audio Talks from the 2019 National Patient Conference:

  • The Complexities of Sjögren’s: An Overview, by Theresa Lawrence Ford, MD
  • Oral Manifestations of Sjögren’s, by Vidya Sankar, DMD, MHS
  • Fatigue and Sjögren’s, by Donald E. Thomas, Jr., MD
  • Understanding Blood Changes and Lab Results, by Alan N. Baer, MD
  • Ocular Manifestations of Sjögren’s, by Esen K. Akpek, MD
  • Nutrition, Wellness and Autoimmune Disease, by Lauri Lang, RDN, LDN
  • How Sjögren’s Can Impact the Central Nervous System, by Edward A Maitz, PhD

Click here to view audio downloads  from SSF National Patient Conferences 

Click here to view audio CDs  from SSF National Patient Conferences 

(You must be logged in to purchase at the Member Price. Double check that you are receiving the correct price before finalizing your purchase.) 

These audio presentations are an excellent way to have a permanent resource with some of the most vital information available to Sjögren's patients. Purchase just the talks you want to hear or purchase the whole set! 

Click here to order one of our available 2019 talks or you can order by calling our office toll-free at 1-800-475-6473.

Topics: Nutrition, Dry Mouth, Dry Eyes, Symptoms, National Patient Conference, #ThisIsSjögrens, Sjögren’s, Central Nervous System

A Caregiver's Reflection

Posted on Wed, Jun 12, 2019

CaregiverToday is not terribly different from any other day. The day begins... slowly.
Introducing a reference to time...not recommended.

Because there is no way to know how the patient will feel. Will it be a sick day? Will it be a pain day? Will it be both? Too uncomfortable for breakfast?

Questions.
Questions are not helpful.
Rather, just know what to do, know what to say.

And find the sunshine. Project happy thoughts. (no questions). Everything hurts.

The role of a caregiver is demanding, unselfish and ever-present. The role requires an ability to not just listen but hear and then measure the appropriate response. Because the patient does not want help with everything. They still want to preserve whatever bit of independence they can, why, because they have lost so much. The tendency is to react, to offer to do everything...don’t do that, the patient needs to retain any degree of independence they can.

It was not always like this.

The patient used to be able to do so much more. The patient was able to do everything. Clean the house, go for a run, take an exercise class, take a spin class, work in the garden, get-up-n-go, have a job, have a schedule.

Over the many years of battling Sjögren’s, so many therapies and medications have been tried. And while the disease chose its own paths of advancement, the therapies and medication side effects imposed their own blend of affect, interaction, ineffectiveness and ultimately uselessness.

The search for better and more effective treatment is endless. An infinite amount of time is spent reading blogs, web sources and drug explanations. Visits to specialists have become routine. The challenge in each encounter is to both cram as much background in as possible to set-the-table (mindful of the allowable 11-minute interval) then mine for gems that can be actionable, that can deliver hope.

Now, as difficult as managing the total body sickness, overcoming crushing fatigue, containerizing and filing pain, the sense of loss trumps all. The feeling of what was this body, what activities used to be possible, a job, housework, time with friends, time with family, possessing the energy to live...it’s all different, it’s not the same.

But. The patient looks fine.
What?
The patient looks good.
I know the depth of the battle, the dimension of sickness, the crush of pain, but no one else can see it. I know the effort to be ready-to-go is an extraordinary effort. Everything hurts. The shower water hurts. Standing on bare feet hurts. Food hurts.

And so we go places. We see people. And people ask the patient: “how are you?” “you look good!” “you look better.” “you sound better.” Hmm. Patient replies, “I’m fine.”

Next comes the judgment part. The patient looks good so the patient must be fine.

So much loss.
So many things have been taken away by Sjögren’s. Friends don’t know what to say, many stay away. Friends remain out-of-touch because they have been unable to listen, to comprehend, to empathize. And this may even apply to family. They arrive at the same point, unable to listen, to comprehend, to empathize. Then, when choices are made for travel, travel to locations that exclude the patient, the feedback is “we did not think you could handle it," or “we did not want to be a burden."

So much loss.
Sadly, family is precisely what the patient needs. The presence of family serves as fuel to flush the fatigue, to silence the body sickness, to file the pain away. Here is where you come to a fork in the road: to be honest with friends and family as to the level of sickness, the level of life’s change, or, rather, choose to withhold, to internalize, to privatize as insulation to prevent any further pain, the pain of loss.

Loneliness sets in. For the patient, loneliness that few, maybe no one, understands what living with Sjögren’s is like. No doctor, no specialist, no pharmacist...no one knows. The same holds true for the caregiver. Dare we say, “what about me?” Does anyone know what it’s like to watch a person you love slowly disintegrate? Does anyone understand the feelings we have, the helplessness, the fear, the hurt, the sadness, the guilt, the loneliness? We are bystanders with a close-up view of the tick-tock disease progression, the effect of treatment side effects, the expression of discomfort, of sick, of pain, yet powerless without tools to help.

I have used the term right-sizeto describe the types of activities we can do. The plans I make (suggest) are right-sizedto the level of ability of the patient. Forget the things we used to do, or more accurately stated, can no longer do, rather, “let’s go shopping,” “let’s go for a walk,” “let’s go to a movie.” As a caregiver, I have right-sizedmy activity to the mutually acceptable level of the patient.

And yet, we stay positive, we stay strong, we stay resolute because there is no other choice.

To all the caregivers out there, you possess the power to instill the seed of possibility, of promise and of hope. Smile.

This article was first printed in The Moisture Seekers, SSF's patient newsletter for members. 

Click Here to Receive our Newsletter  by Becoming an SSF Member

 

Topics: #ThisIsSjögrens, Sjögren’s, Care Giver Burnout

Exploring Sjögren’s

Posted on Thu, May 02, 2019

Exploring_Sjogren_logo_finalExploring Sjögren’s is the SSF's new YouTube video series that explores Sjögren’s and the daily lives of our patients. We have created six episodes for season one that discuss Sjögren’s as a disease and the work being done to help conquer the complexities of Sjögren’s. In addition, two of the episodes specifically focus on living with Sjögren’s and how our patients cope. The first episode premiered on April 30th, with a new episode airing each following Monday. The final episode of season 1 will be airing on Monday, June 3rd. Catch up on all episodes in season one and click here to visit our Exploring Sjögren’s YouTube page.

Special thanks Brad Lemack from Lemack & Company, our Executive Producer, and all the physicians, researchers and patients who took part in season one of this important project! Click here to view our first episode.

 

Episode 1: What is Sjögren's 

 

Episode 2: The Impact of Sjögren's 

Episode 3: Pregnancy and Sjögren’s

Exploring Sjögren's Episode 3

Episode 4: Sjögren’s Research

Research

Episode 5: Tips for Living with Sjögren’s

Episode 5

Episode 6: Clinical Trials and Sjögren’s

Exploring Sjögren's Episode 6

Thank you for watching season one of our new YouTube series!

 

Topics: Treatment, #ThisIsSjögrens, Sjögren’s, Exploring Sjögren's

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