Conquering Sjogren’s: Follow us on our journey to change the face of Sjogren’s

Valentine's Day Giveaway!

Posted on Fri, Feb 14, 2020

 

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Valentine's Day Giveaway

To celebrate the season of love, the Sjögren's Foundation is holding our annual Valentine's Day giveaway to show how much we appreciate you! Read below to learn how to enter and win one of three complimentary registrations to the 2020 SSF National Patient Conference!

How to Enter:

To enter, all you have to do is comment "Happy Valentine's Day" below on this blog post by 11:59pm EST today- February 14, 2020. The Foundation will privately email the three winners on Wednesday, February 19, 2020. Winners will be picked at random and the registrations are only transferable through family members, which means your family members may also comment and enter can comment below to give you an extra chance at winning! Please email us at info@sjogrens.org with any questions.

2020 National Patient Conference
April 3-4, 2020
Phoenix, AZ

NPC 2020 CoverPresentation topics will include:

  •  Sjögren's: An Overview
  • Integrative Medicine: A Role for Treatment in Sjögren's
  • Oral Manifestations of Sjögren's
  • "Ask the Doctor" Panel
  • International Sjögren's Research Update
  • Autonomic Nervous System Involvement and POTS
  •  How Coaching Can Help You Live Your Best Life
  •  Sjögren's and Dry Eyes: What's New?
  •  Pediatric Sjögren's
  • Transforming the Future of Sjögren's
  • And more to be announced!

 

Click to learn more

Topics: Sjögren’s

2019 Highlights from the Sjögren's Foundation

Posted on Tue, Dec 24, 2019

2019 EOY banner - thin

2019 was an exciting year for the Sjögren's Foundation and we want to share with you the impact being made in the fight against Sjögren’s. However, the greatest impact is being made by YOU. It is your generosity and support that has made this past year's achievements possible. Below are some examples of how your donations have made a difference in conquering the complexities of Sjögren’s.

2019 highlights

SERVING AS THE VOICE OF ALL SJÖGREN’S PATIENTS
eularDuring the past year, Foundation staff attended, participated, and presented at numerous meetings and events to help maximize our reach and guarantee that the Sjögren’s community’s voice is heard. One of our top priorities is ensuring that the patient voice is part of every discussion around clinical trials, research initiatives, legislation, and the decisions of government agencies. Just this past year we attended meetings and events held by the National Institutes of Health, the U.S. Food & Drug Administration (FDA), the American College of Rheumatology (ACR), the National Health Council, the American Association for Dental Research, and more. International meetings and research collaborations included the European Congress of Rheumatology (EULAR), Sjögren Europe, the NECESSITY project, HarmonicSS, and the International Association for Dental Research.

CLOSER TO FINDING NEW TREATMENTS FOR SJÖGREN'S
The Foundation's Clinical Trials Consortium, an international initiative to increase the availability and accessibility of therapies to treat Sjögren’s, continues to expand its efforts. Recent meetings were held to further evaluate key issues surrounding clinical trials while focusing on the development of better outcome measures in Sjögren’s and the discovery of diagnostic and prognostic biomarkers. Additionally, in 2019, the Foundation designed and launched the Sjögren’s Training and Education Platform (STEP), the first ever online resource to be used to train clinical trial investigators. There are more than ten pharmaceutical companies working on developing potential therapies for Sjögren’s and the Foundation is engaged with these companies as well as the FDA to ensure that therapies are developed to meet the needs and wants of Sjögren’s patients.

FURTHERING SJÖGREN’S CLINICAL PRACTICE GUIDELINES
CPGs phase 1Phase 2 of the Foundation's Clinical Practice Guidelines (CPGs) is well underway and will expand the number of topic areas covered. Included in Phase 2 are guidelines for pulmonary complications, central nervous system involvement, peripheral nervous system involvement, lymphoma and vasculitis. These will significantly increase the guidance offered on the management and treatment of Sjögren’s. It will also expand the breadth and number of specialists who have not traditionally trained and/or been involved with the of treatment of Sjögren’s. The Foundation is working with nearly 100 healthcare providers recruited to assist with the development of Phase 2.

NEW RESEARCH GRANTEES UNDER REVAMPED PROGRAM
ResearchersNamesThe Foundation was excited to announce the 2019-2020 research grant recipients - the first under the newly revamped Research Grant Program. This new program offers two distinct grant types, the High Impact Research Grant at $75,000 and the Pilot Research Grant at $25,000. The research review committee also renewed three research grants from the 2018-2019 awardees. 
 
The Foundation uses a rigorous review process that chooses our awardees by determining which projects will have the greatest potential impact on the lives of those living with Sjögren’s while placing a high priority on both clinical and scientific research into the cause, prevention, detection, and treatment of Sjögren’s. The Foundation is excited that this past year we saw a substantial increase in the number of applications received.

PROVIDING PATIENT SUPPORT & SJÖGREN'S EDUCATION
  • education2In April, over 550 people attended the Foundation's National Patient Conference (NPC) near Boston, MA. This was the largest attendee turnout ever for an NPC. Another 175 people recently attended a one-day patient conference in Cleveland, OH.
  • The Foundation continues to support 65 local support groups and Awareness Ambassadors throughout the U.S.
  • The Foundation also continues to develop a patient newsletter with up-to-date information while addressing pressing topics and patient tips.
  • In 2019, the Foundation created and launched a new web series on YouTube called Exploring Sjögren’s which explores the disease and the lives of patients living with Sjögren’s and how they cope.
  • Additionally, the Foundation website, www.sjogrens.org, remains a top source for Sjögren’s information for patients, their families, and healthcare providers.

PROVIDING CREDIBLE RESOURCES & EDUCATION FOR HEALTHCARE PROFESSIONALS
  • SQ-2The Foundation led a successful effort to revise the U.S. ICD-10 code (International Statistical Classification of Diseases and Related Health Problems, 10th revision) for Sjögren's - a major victory for Sjögren's.
  • The Foundation attended the ACR Annual Meeting where it hosted a Study Group on Global Updates in Sjögren's and participated in multiple poster and abstract sessions.
  • The Foundation recently attended the Pri-Med Conference for primary care physicians where it presented a continuing medical education session on Sjögren's to more than 800 doctors.
  • The Foundation continues to produce Sjögren's Quarterly, a complimentary publication distributed 4x a year to all healthcare professionals and researchers interested in Sjögren's.

Once again, on behalf of the Sjögren's Foundation, thank you for helping to make these 2019 successes and accomplishments possible! Your support and generosity has helped the Foundation continue our fight to conquer the complexities of Sjögren's. If you would like to learn more or have any questions about our programs and initiatives, please do not hesitate to contact the Foundation. We are truly grateful for your help and look forward to achieving even greater success in 2020!

All my best,

Steve_Sig.jpg
Steven Taylor
Chief Executive Officer
 
We encourage you to share this with family and friends so they too have the opportunity to see the work and impact the Foundation is having in the fight against Sjögren’s.
 
Make a Donation Now
 

Topics: Sjögren’s

Get the Inside Scoop & Receive the Sjögren's Foundation Newsletter!

Posted on Thu, Aug 29, 2019

Summer TMS CoverFor $3 a month, you can become a member of the Sjögren's Foundation and receive great resources, while also supporting the vital work being done to conquer this complex disease.

Join now with thousands of others who subscribe to our newsletter and receive discounts on Sjögren's resources. 

Member benefits include:

  • A subscription to the Sjögren's Foundation patient newsletter: This newsletter contains the latest information on Sjögren's, practical tips for daily living, and answers to medical questions from the experts.

  • A New Member packet with helpful information about Sjögren's and the SSF. 

  • You will receive updates on new product launches and information/discounts available to SSF Members for over-the-counter and/ or prescription products.

  • Receive information about upcoming Sjögren's clinical trials and clinical research in your area.

  • Access to a network of knowledgeable volunteers and local support groups.

  • Exclusive access to the members-only section of sjogrens.org, featuring resources unavailable to other site visitors such as archives of the most popular newsletter articles, our online product guide and access to our online community.

  • Members-only discounts on a variety of products and services such as The Sjögren's Syndrome Handbook and registration for our educational conferences.

  • Providing the Foundation with one more voice to increase awareness, educate others, and encourage research – all of which help in the fight to conquer Sjögren's.

    Click here to become an SSF member today and email us at info@sjogrens.org with any questions. 

    Take Control of Your Health!  Receive our Newsletter by Becoming an SSF Member

Recent newsletter covers include:

Summer TMS Cover

June TMS Cover 

May TMS Cover 

April Cover 2019

TMS MARCH 2019 Cover

February 2019 Cover

January TMS 2019 Cover

Click Here to Receive our Newsletter  by Becoming an SSF Member

 

Topics: Pulmonary manifestation, Dry Mouth, Dry Eyes, Sjogren's, Joint Pain, Fatigue, coping with sjogren's, Gastroesophageal Reflux, Advocacy, Sjögren’s, Heart disease

Did You Miss the 2019 Sjögren's Conference?

Posted on Sat, Jun 29, 2019

2019 NPC CDIf you missed the SSF 2019 National Patient Conference, you can now get all the vital information you need in an audio format!

Seven of our most popular talks from the Sjögren's National Patient Conference held in Woburn, Massachusetts, are available for purchase. Each talk is 30-40 minutes long and comes with the handouts used by the presenter so you can follow along.

 

Available Audio Talks from the 2019 National Patient Conference:

  • The Complexities of Sjögren’s: An Overview, by Theresa Lawrence Ford, MD
  • Oral Manifestations of Sjögren’s, by Vidya Sankar, DMD, MHS
  • Fatigue and Sjögren’s, by Donald E. Thomas, Jr., MD
  • Understanding Blood Changes and Lab Results, by Alan N. Baer, MD
  • Ocular Manifestations of Sjögren’s, by Esen K. Akpek, MD
  • Nutrition, Wellness and Autoimmune Disease, by Lauri Lang, RDN, LDN
  • How Sjögren’s Can Impact the Central Nervous System, by Edward A Maitz, PhD

Click here to view audio downloads  from SSF National Patient Conferences 

Click here to view audio CDs  from SSF National Patient Conferences 

(You must be logged in to purchase at the Member Price. Double check that you are receiving the correct price before finalizing your purchase.) 

These audio presentations are an excellent way to have a permanent resource with some of the most vital information available to Sjögren's patients. Purchase just the talks you want to hear or purchase the whole set! 

Click here to order one of our available 2019 talks or you can order by calling our office toll-free at 1-800-475-6473.

Topics: Nutrition, Dry Mouth, Dry Eyes, Symptoms, National Patient Conference, #ThisIsSjögrens, Sjögren’s, Central Nervous System

A Caregiver's Reflection

Posted on Wed, Jun 12, 2019

CaregiverToday is not terribly different from any other day. The day begins... slowly.
Introducing a reference to time...not recommended.

Because there is no way to know how the patient will feel. Will it be a sick day? Will it be a pain day? Will it be both? Too uncomfortable for breakfast?

Questions.
Questions are not helpful.
Rather, just know what to do, know what to say.

And find the sunshine. Project happy thoughts. (no questions). Everything hurts.

The role of a caregiver is demanding, unselfish and ever-present. The role requires an ability to not just listen but hear and then measure the appropriate response. Because the patient does not want help with everything. They still want to preserve whatever bit of independence they can, why, because they have lost so much. The tendency is to react, to offer to do everything...don’t do that, the patient needs to retain any degree of independence they can.

It was not always like this.

The patient used to be able to do so much more. The patient was able to do everything. Clean the house, go for a run, take an exercise class, take a spin class, work in the garden, get-up-n-go, have a job, have a schedule.

Over the many years of battling Sjögren’s, so many therapies and medications have been tried. And while the disease chose its own paths of advancement, the therapies and medication side effects imposed their own blend of affect, interaction, ineffectiveness and ultimately uselessness.

The search for better and more effective treatment is endless. An infinite amount of time is spent reading blogs, web sources and drug explanations. Visits to specialists have become routine. The challenge in each encounter is to both cram as much background in as possible to set-the-table (mindful of the allowable 11-minute interval) then mine for gems that can be actionable, that can deliver hope.

Now, as difficult as managing the total body sickness, overcoming crushing fatigue, containerizing and filing pain, the sense of loss trumps all. The feeling of what was this body, what activities used to be possible, a job, housework, time with friends, time with family, possessing the energy to live...it’s all different, it’s not the same.

But. The patient looks fine.
What?
The patient looks good.
I know the depth of the battle, the dimension of sickness, the crush of pain, but no one else can see it. I know the effort to be ready-to-go is an extraordinary effort. Everything hurts. The shower water hurts. Standing on bare feet hurts. Food hurts.

And so we go places. We see people. And people ask the patient: “how are you?” “you look good!” “you look better.” “you sound better.” Hmm. Patient replies, “I’m fine.”

Next comes the judgment part. The patient looks good so the patient must be fine.

So much loss.
So many things have been taken away by Sjögren’s. Friends don’t know what to say, many stay away. Friends remain out-of-touch because they have been unable to listen, to comprehend, to empathize. And this may even apply to family. They arrive at the same point, unable to listen, to comprehend, to empathize. Then, when choices are made for travel, travel to locations that exclude the patient, the feedback is “we did not think you could handle it," or “we did not want to be a burden."

So much loss.
Sadly, family is precisely what the patient needs. The presence of family serves as fuel to flush the fatigue, to silence the body sickness, to file the pain away. Here is where you come to a fork in the road: to be honest with friends and family as to the level of sickness, the level of life’s change, or, rather, choose to withhold, to internalize, to privatize as insulation to prevent any further pain, the pain of loss.

Loneliness sets in. For the patient, loneliness that few, maybe no one, understands what living with Sjögren’s is like. No doctor, no specialist, no pharmacist...no one knows. The same holds true for the caregiver. Dare we say, “what about me?” Does anyone know what it’s like to watch a person you love slowly disintegrate? Does anyone understand the feelings we have, the helplessness, the fear, the hurt, the sadness, the guilt, the loneliness? We are bystanders with a close-up view of the tick-tock disease progression, the effect of treatment side effects, the expression of discomfort, of sick, of pain, yet powerless without tools to help.

I have used the term right-sizeto describe the types of activities we can do. The plans I make (suggest) are right-sizedto the level of ability of the patient. Forget the things we used to do, or more accurately stated, can no longer do, rather, “let’s go shopping,” “let’s go for a walk,” “let’s go to a movie.” As a caregiver, I have right-sizedmy activity to the mutually acceptable level of the patient.

And yet, we stay positive, we stay strong, we stay resolute because there is no other choice.

To all the caregivers out there, you possess the power to instill the seed of possibility, of promise and of hope. Smile.

This article was first printed in The Moisture Seekers, SSF's patient newsletter for members. 

Click Here to Receive our Newsletter  by Becoming an SSF Member

 

Topics: #ThisIsSjögrens, Sjögren’s, Care Giver Burnout

Exploring Sjögren’s

Posted on Thu, May 02, 2019

Exploring_Sjogren_logo_finalExploring Sjögren’s is the SSF's new YouTube video series that explores Sjögren’s and the daily lives of our patients. We have created six episodes for season one that discuss Sjögren’s as a disease and the work being done to help conquer the complexities of Sjögren’s. In addition, two of the episodes specifically focus on living with Sjögren’s and how our patients cope. The first episode premiered on April 30th, with a new episode airing each following Monday. The final episode of season 1 will be airing on Monday, June 3rd. Catch up on all episodes in season one and click here to visit our Exploring Sjögren’s YouTube page.

Special thanks Brad Lemack from Lemack & Company, our Executive Producer, and all the physicians, researchers and patients who took part in season one of this important project! Click here to view our first episode.

 

Episode 1: What is Sjögren's 

 

Episode 2: The Impact of Sjögren's 

Episode 3: Pregnancy and Sjögren’s

Exploring Sjögren's Episode 3

Episode 4: Sjögren’s Research

Research

Episode 5: Tips for Living with Sjögren’s

Episode 5

Episode 6: Clinical Trials and Sjögren’s

Exploring Sjögren's Episode 6

Thank you for watching season one of our new YouTube series!

 

Topics: Treatment, #ThisIsSjögrens, Sjögren’s, Exploring Sjögren's

Sjögren's Awareness Month 2019!

Posted on Mon, Apr 01, 2019

Conquering Sjögren's

#ThisIsSjögrens 

April is Sjögren’s Awareness Month!  Sjögren’s is one of the most prevalent but still lesser known autoimmune diseases. It is also not a “cookie cutter” disease and affects patients differently. This can lead to a misunderstanding about the seriousness of the disease and be extremely isolating for those living with it.

Using our new 2019 theme, Conquering the Complexities of Sjögren's, we are going to expand our #ThisIsSjögrensonline campaign. We will post every day in April, using one or more of our social media channels, to create a better understanding of the disease. While the daily posts will each give one small glimpse into living with Sjögren’s, by the end of April, we hope these 30 posts will help others visualize the vast impact of the disease.

Help us conquer the complexities of Sjögren's this April because every day is an opportunity to start a conversation about Sjögren’s and how it affects you. The more others understand, the more support you can find. 

2019_FB_Frame_02Get Involved!


Day 1
Candi 2019 April

Candi B., 46 (diagnosed at 43), Disabled (Former payroll manger)

My most difficult Sjögren's symptoms is living with 49% lung function. I wish people knew how dangerous it is to call this only a “dry eye and dry mouth disease.” Remember to advocate for your health before this disease becomes fatal. #ThisIsSjögrens

Click here to view our daily  April Awareness campaign on Facebook!

If you do not use social media, click here to view the daily posts.

                                             

Topics: Sjögren’s Awareness Month,, April Awareness Month, #ThisIsSjögrens, Sjögren’s

It's almost Sjögren's Awareness Month!

Posted on Fri, Mar 15, 2019

Conquering Sjögren's

#ThisIsSjögrens 

April is Sjögren's Awareness Month and we hope you will join us in educating the public about this complex disease and how it affects those who are living with it. Even though Sjögren’s awareness continues to rise, it is still one of the most prevalent but lesser known autoimmune diseases. This can lead to a misunderstanding about the seriousness of the disease.

Using our new 2019 theme, Conquering the Complexities of Sjögren's, we are going to expand our #ThisIsSjögrens social media campaign to help others visualize what it is like for patients living with the disease.   

We will post every day in April, using one or more of our social media channels, to create a better understanding of the disease. To help portray the entire patient experience, the SSF will be using Sjögren's facts along with real patient stories to help close the gap between the reality of Sjögren’s and the perception that many non-patients have. 

Help us conquer the complexities of Sjögren's this April by following our #ThisIsSjögrens social media posts. While the daily posts will each give one small glimpse into living with Sjögren’s, by the end of April we hope these 30 posts will shine a light on Sjögren’s and ensure a greater understanding of this disease.

Let Your Voice Be Heard!

SSF This Is Sjogren'sIf you would like you and your story can be featured in this year's campaign, please email us your answers from the questionnaire below and a picture of yourself, to tms@sjogrens.org with the subject line: “April Awareness Month 2019.” 30 stories will be featured in this year's campaign. 

 


#ThisIsSjögrens 2019 Questionnaire
(Please email your answers and a picture of yourself to tms@sjogrens.org.) April FB Frame

Name (The Foundation will only publish first names):

Email: 

Current age: 

Age when diagnosed (or What is your connection to the disease):

City/State:

How would you describe yourself in one word (teacher, graphic designer, stay at home parent): 

What are your top three most difficult symptoms to live with:

What is your most difficult symptom that people don't understand: 

What do you wish people knew about your Sjögren’s: 

What’s your best Sjögren’s tip: 

Don’t forget to include a picture of yourself!

                                             

Topics: Sjögren’s Awareness Month,, April Awareness Month, #ThisIsSjögrens, Sjögren’s

Valentine's Day Giveaway!

Posted on Thu, Feb 14, 2019

*****
Congratulations to our 2019 SSF Valentine's Day Giveaway Winners! The winners are Sandy, 
Sabrina and Marianella. The Foundation has privately emailed the three winners.

Thank you to everyone who supported the SSF by participating in our giveaway! 
*****

 

Valentine's Day 19

To celebrate the season of love, the SSF is holding our annual Valentine's Day giveaway to   Sjö how much we appreciate you! Read below to learn how to enter and win one of three complimentary registrations to the 2019 SSF National Patient Conference! 2019 SSF NPC Cover

How to Enter:
To enter, all you have to do is comment "Happy Valentine's Day" below by 11:59pm EST today- February 14, 2019. The Foundation will privately email the three winners on Tuesday, March 5, 2019. Winners will be picked at random and the registrations are only transferable through family members, which means your family members may also comment and enter can comment below to give you an extra chance at winning! Please email us at info@sjogrens.org with any questions. 

 

 

The 2019 National Patient Conference
April 5-6, 2019
Hilton Boston/Woburn, Woburn, Massachusetts

Presentation topics will include:

• The Complexities of Sjögren’s: An Overview
Fatigue and Sjögren’s
Oral and Ocular Manifestations of Sjögren’s
Sjögren’s Clinical Trials Update
Understanding Blood Changes and Lab Results
Living with Sjögren’s: A Patient Panel
How Sjögren’s Can Impact the Central Nervous System
Nutrition, Wellness and Autoimmune Disease
• And more!

Click to learn more

Topics: National Patient Conference, Sjögren’s

A New Vision and Mission for the SSF

Posted on Wed, Jan 30, 2019

SSF 35 yearsThe Sjögren's Syndrome Foundation (SSF) began in 1983 in the home of Elaine Harris, a patient. For the past 35 years, the SSF has been honored to support all Sjögren’s patient and the mantra of Elaine—“founded by a patient, for patients” —remains the center of what we do by ensuring that the patient voice is never lost in our efforts.

Over the years, the work of the Foundation has grown and adapted to meet the needs of both current patients and future generations. As we continue to expand our reach and scope as the disease evolves, the SSF volunteer Board of Directors wanted to clearly communicate our vision and what we want to accomplish in the coming years.

Today, the SSF is proud to announce that after months of planning and the involvement of many volunteers, patients, researchers and physicians, we have set a new vision statement.

SSF Vision Statement:

“To create a community where patients, healthcare professionals and researchers come together to conquer the complexities of Sjögren’s.”

With a new vision, the Foundation decided to update our mission to better reflect our current and future goals and aspirations for the SSF. 

SSF Mission Statement:

     • Support Sjögren’s patients and their loved ones through education, resources and services
      • Provide credible resources and education for healthcare professionals
      • Serve as the voice for all Sjögren’s patients through advocacy and awareness initiatives
      • Lead, encourage and fund innovative research projects to better understand, diagnose and treat Sjögren’s


The new mission and vision statements underscore the SSF’s commitment to supporting patients, while acknowledging the truly complex nature of the disease. The core values from our previous mission statement that we had for 35 years remains the same: educate patients and their families about Sjögren's, increase public and professional awareness of Sjögren's, and research into new treatments and a cure. The updated mission encompasses those core values but includes our work in advocacy, professional educational resources and patient programs, to better portray what work needs to be done today in order to conquer this debilitating disease.

January TMS 2019 CoverThe accomplishments of the past 35 years have been incredible and the SSF has recently seen extraordinary results from our efforts. It was only a year ago that we announced surpassing our 5-Year Breakthrough Goalto reduce the time of diagnosis by 50% in 5 years. Taking the average diagnosis time from over 6 years to 2.8 years.  Back in 2012, when we established the goal, we were told by experts that it would be very hard to reach.   But the SSF staff and volunteers knew that the Foundation couldn’t sit on the sidelines and let patents go years without having a proper diagnosis. 

We also knew, that by getting patients diagnosed quicker, patients could then get the appropriate treatment to hopefully prevent and/or be monitored for serious complications such as corneal scarring, loss of teeth, internal organ involvement, misdiagnosed neuropath pain, profound fatigue, or chronic upper respiratory problems, to just name a few. Systemic issues could also be caught earlier and mitigated. With our new mission and vision, it is still our hope to have Sjögren’s at the top of physician’s minds when they hear a patient complaining of dry mouth, dry eye, fatigue, or joint pain, because no patient should have to suffer from the lack of a physician’s awareness and education. This is why our awareness efforts will surely continue. Other recent achievements include: writing and publishing the first-ever clinical practice guidelines on how to treat and manage Sjögren’s patients with Phase 2 currently underway; our work in getting closer to developing a drug to treat all Sjögren’s symptoms; and efforts to increase awareness and educate healthcare professionals to ensure Sjögren’s is not forgotten in the research, pharmaceutical or physician communities.

We know our work is far from over, but we have also seen what we are able to accomplish together! We are seeing the disease being taken more seriously in the medical community. The Foundation will continue building on our work to ensure Sjögren’s is not forgotten in the research, pharmaceutical or physician communities.  We are committed to accelerating the development of better diagnostic, management and therapeutics that will have the greatest potential impact on improving the quality of life for Sjögren’s patients. 

The SSF Board of Directors and staff are humbled by your support and what we have been able to achieve together. From our patient volunteers to our professional educators and corporate partners, thank you to everyone who has helped us along our way and who are continuing to stand with us as we look to the future. We encourage you to look for opportunities in this new year to become more involved with the Foundation and stand up for all patients, both current and future generations.

The updated mission and new vision of the Sjögren’s Syndrome Foundation will allow us to successfully forge ahead as we work to conquer the complexities of Sjögren’s.

Together we can make our vision a reality!

Click Here to Receive our Newsletter  by Becoming an SSF Member

The information from this post was first published in The Moisture Seekers, SSF's member newsletter.

 

Topics: 50in5: Breakthrough Goal, Clinical Practice Guidelines, Sjögren’s

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