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2020 National Patient Conference

Sjögren’s Foundation Statement on Coronavirus


The Sjögren’s Foundation is committed to the health and safety of our patients, their families and our volunteers.

This past week, the Foundation has been monitoring the Coronavirus 19 (COVID-19) outbreak as well as working with the Hyatt Regency Phoenix to re-negotiate and reschedule our National Patient Conference.

At this time, we, unfortunately, have to announce that our April 3rd and 4th National Patient Conference in Phoenix, Arizona, will be postponed.  We are working to re-schedule the conference for this June, so please stay tuned for exact dates.  We will be announcing them as soon as we can re-negotiate our contract.

We know many of you were looking forward to the conference, as it is the Foundation’s premier educational event each year.  The Foundation did not make this decision lightly, as our patients’ health and safety will always come first.

As for now, if you made travel or hotel plans, we encourage you to cancel them.  The hotel will NOT cancel your hotel room if you have a reservation – so you MUST call 602-252-1234 to cancel your room reservation.  Once we have the new conference date, you will then have to call the hotel back to make a new reservation.  

In regards to the registration fee you paid to the Foundation, we will work with each of you to refund 100% of your registration fee.  We will also work with anyone that would like to transfer their registration to the new conference dates in June.  Exact details on refunds and/or registering for the new conference will come out next week.

As many of you know, the Foundation put out a statement yesterday with precautions that Sjögren’s patients should be taking in regards to COVID-19. We encourage all patients to follow these precautions in concert with advice from their physicians.  Please click here to see our latest update:

We know that the coming weeks will include times of stress and anxiety, as we are all chartering this unknown territory.  Rest assured, that the Foundation will be alongside you as we continue to offer support and advice to Sjögren’s patients on COVID-19.

Be safe and continue to please listen to your healthcare professional.



Steven Taylor
President and Chief Executive Officer